Health and Care Research

What is health and care research and why is it important?

We are committed to our population living happier and healthier lives. Research is one way that we can make this happen by providing the evidence to improve treatments and care. This could be by testing new medicines or vaccines or by completing questionnaires to help us understand how people feel about the care they receive.


Benefits to taking part in research can include learning more about your health or receiving closer monitoring. Taking part in a project may not always help you directly, but you will be helping to improve services and treatments now and in the future.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research Engagement Network

The Research Engagement Network supports and champions the involvement of patients and the public in research, working with volunteers and Voluntary, Community, Faith and Social Enterprises (VCFSEs) across all stages of the research process, and providing advice and guidance to researchers on good practice.


The team also work to raise the profile of research to encourage participation in and engagement with research studies by working with local communities. In collaboration with our system partners we are delivering an NHS England funded initiative called Research Engagement Networks (REN).


Our local Research Engagement Network is coordinated by the Norfolk and Suffolk Integrated Care Board (ICB), the Regional Research Delivery Network (RRDN) and in collaboration with Thinklusive.


This initiative creates a platform for researchers to exchange experiences, foster learning and support under-represented groups to participate in research.


The Network:


  • Builds a local research environment that is supportive and inclusive for our diverse communities.
  • Builds trusting, mutually beneficial relationships with the community and VCFSE sector.
  • Listens to, and understands, local communities better.
  • Collaborates with community members and organisations to make research more inclusive and representative.
  • Highlights the need for making reasonable adjustments within research happening locally.
  • Provides a check and challenge to local research teams to create more accessible research.
  • Offers input, ideas, and recommendations to teams at all stages of the research process.

The Research Engagement Network for Norfolk and Suffolk comprise two key elements: the virtual network and community research hubs. These are funded jointly by NHS England and the Regional Research Delivery Network.



Virtual Network

What is it?

This is a virtual network for VCFSE groups to interact with researchers and research delivery teams to hear how they can become involved in various research studies and access training.


What does it do?

The purpose of the network is to highlight research projects to VCFSE groups that are interested in research and to hear from researchers who want to engage with VCFSE groups to enhance their studies.


Max Clark (Thinklusive) chairs a meeting every two months (1 hour, online) to hear presentations from researchers and research delivery teams to highlight relevant research projects to VCFSE groups. Max also regularly shares research projects via email so that VCFSE groups can take part in research if it is relevant to them.


Who can attend and take part?

This network is open to anyone interested in research across Norfolk and Suffolk, working in a VCFSE organisation. You do not have to have any previous experience of research. We know research can be intimidating, and there is usually lots of conversation between colleagues. These meetings are informal, and it is ok to just listen to the conversation.


What do I need to do to join the network?

Please complete the survey below to register to receive emails and the dates of upcoming meetings.



Community Research Hubs

What are they?

The community research hubs are designed to set up a process in eight local areas across Norfolk and Suffolk to support VCFSE groups to recruit members of their communities into research studies. This is important as it makes research more representative of the population and gives access to new treatment approaches that wouldn’t have been available previously.


What do they do?

Each of the hubs is a collection of around three VCFSE groups that have come together to form a core group. Currently, hubs are up and running in Great Yarmouth, Thetford, Waveney, King’s Lynn and Norwich. The VCFSE groups work together with the Integrated Care Board (ICB), Regional Research Delivery Network, Community Action Norfolk and other partners to find ways in which they can recruit members of their communities into research studies or they can support research nurses to run clinics in their community spaces.


To support the hubs, the ICB brings together all partners with the VCFSE groups that are leading each hub once a month to share learning and find out what support is needed.


Who can take part?

Once hubs are established, VCFSE groups in those areas are advised to contact their local hub in the first instance to see how they can get involved. Information on the local hubs can be obtained by contacting nwicb.researchinnovation@nhs.net. We are in the process of establishing three new hubs across Suffolk and the process for this is being led through the virtual network.



Get Involved - Be part of Research

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.

You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you. See video below for more details. The link to sign up is: https://bepartofresearch.nihr.ac.uk/

What is health and care research and why is it important?

We are committed to our population living happier and healthier lives. Research is one way that we can make this happen by providing the evidence to improve treatments and care. This could be by testing new medicines or vaccines or by completing questionnaires to help us understand how people feel about the care they receive.


Benefits to taking part in research can include learning more about your health or receiving closer monitoring. Taking part in a project may not always help you directly, but you will be helping to improve services and treatments now and in the future.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research Engagement Network

The Research Engagement Network supports and champions the involvement of patients and the public in research, working with volunteers and Voluntary, Community, Faith and Social Enterprises (VCFSEs) across all stages of the research process, and providing advice and guidance to researchers on good practice.


The team also work to raise the profile of research to encourage participation in and engagement with research studies by working with local communities. In collaboration with our system partners we are delivering an NHS England funded initiative called Research Engagement Networks (REN).


Our local Research Engagement Network is coordinated by the Norfolk and Suffolk Integrated Care Board (ICB), the Regional Research Delivery Network (RRDN) and in collaboration with Thinklusive.


This initiative creates a platform for researchers to exchange experiences, foster learning and support under-represented groups to participate in research.


The Network:


  • Builds a local research environment that is supportive and inclusive for our diverse communities.
  • Builds trusting, mutually beneficial relationships with the community and VCFSE sector.
  • Listens to, and understands, local communities better.
  • Collaborates with community members and organisations to make research more inclusive and representative.
  • Highlights the need for making reasonable adjustments within research happening locally.
  • Provides a check and challenge to local research teams to create more accessible research.
  • Offers input, ideas, and recommendations to teams at all stages of the research process.

The Research Engagement Network for Norfolk and Suffolk comprise two key elements: the virtual network and community research hubs. These are funded jointly by NHS England and the Regional Research Delivery Network.



Virtual Network

What is it?

This is a virtual network for VCFSE groups to interact with researchers and research delivery teams to hear how they can become involved in various research studies and access training.


What does it do?

The purpose of the network is to highlight research projects to VCFSE groups that are interested in research and to hear from researchers who want to engage with VCFSE groups to enhance their studies.


Max Clark (Thinklusive) chairs a meeting every two months (1 hour, online) to hear presentations from researchers and research delivery teams to highlight relevant research projects to VCFSE groups. Max also regularly shares research projects via email so that VCFSE groups can take part in research if it is relevant to them.


Who can attend and take part?

This network is open to anyone interested in research across Norfolk and Suffolk, working in a VCFSE organisation. You do not have to have any previous experience of research. We know research can be intimidating, and there is usually lots of conversation between colleagues. These meetings are informal, and it is ok to just listen to the conversation.


What do I need to do to join the network?

Please complete the survey below to register to receive emails and the dates of upcoming meetings.



Community Research Hubs

What are they?

The community research hubs are designed to set up a process in eight local areas across Norfolk and Suffolk to support VCFSE groups to recruit members of their communities into research studies. This is important as it makes research more representative of the population and gives access to new treatment approaches that wouldn’t have been available previously.


What do they do?

Each of the hubs is a collection of around three VCFSE groups that have come together to form a core group. Currently, hubs are up and running in Great Yarmouth, Thetford, Waveney, King’s Lynn and Norwich. The VCFSE groups work together with the Integrated Care Board (ICB), Regional Research Delivery Network, Community Action Norfolk and other partners to find ways in which they can recruit members of their communities into research studies or they can support research nurses to run clinics in their community spaces.


To support the hubs, the ICB brings together all partners with the VCFSE groups that are leading each hub once a month to share learning and find out what support is needed.


Who can take part?

Once hubs are established, VCFSE groups in those areas are advised to contact their local hub in the first instance to see how they can get involved. Information on the local hubs can be obtained by contacting nwicb.researchinnovation@nhs.net. We are in the process of establishing three new hubs across Suffolk and the process for this is being led through the virtual network.



Get Involved - Be part of Research

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.

You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you. See video below for more details. The link to sign up is: https://bepartofresearch.nihr.ac.uk/

  • MSD UK 2026 Grants Programme

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    The second application window of the MSD UK 2026 Grants Programme application window is now OPEN.

    https://www.msd-uk.com/partnerships/grants/

    "After a successful 2025 programme, we will once again welcome applications from healthcare and patient organisations for arm’s length financial grants. These grants are intended to support the delivery of projects which tackle health inequalities and have a meaningful impact for patients and populations.

    Building on the success of last year’s programme and in line with trends in the shifting UK healthcare landscape, we are keen to provide funding support for projects which either: align to a community and neighbourhood care model, are prevention focused, or harness digital innovation to enable healthy living and behaviours.

    Learn more about the scope and eligibility of this programme via the link below."

    Eligible healthcare and patient organisations have until 5pm on the 8th September 2026 to apply.

    The second application window of the MSD UK 2026 Grants Programme application window is now OPEN.

    https://www.msd-uk.com/partnerships/grants/

    "After a successful 2025 programme, we will once again welcome applications from healthcare and patient organisations for arm’s length financial grants. These grants are intended to support the delivery of projects which tackle health inequalities and have a meaningful impact for patients and populations.

    Building on the success of last year’s programme and in line with trends in the shifting UK healthcare landscape, we are keen to provide funding support for projects which either: align to a community and neighbourhood care model, are prevention focused, or harness digital innovation to enable healthy living and behaviours.

    Learn more about the scope and eligibility of this programme via the link below."

    Eligible healthcare and patient organisations have until 5pm on the 8th September 2026 to apply.

  • Using DNA data for life-saving research – public views from the East of England

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    People across the East of England have shared their views on the use of genomic data for health research, recognising its potential to transform diagnosis, treatment and care, according to a new report commissioned by the Eastern England Secure Data Environment (SDE).

    Genomic medicine is the study of how the information contained within an individual’s DNA influences their health and wellbeing. This genetic information can help identify a person’s risk of developing certain conditions and provide insights into how they may respond to specific treatments. Advances in genomic science are transforming healthcare by enabling more accurate diagnoses, supporting earlier detection of disease, and facilitating more personalised approaches to treatment and care.

    To better understand public attitudes towards the use of genomic data in research, the Eastern England SDE commissioned Healthwatch Norfolk to lead a regional engagement project in partnership with Healthwatch Leicester and Leicestershire, Healthwatch Hertfordshire and Healthwatch Essex.

    The project explored people’s views on the use of DNA data generated through routine healthcare for research within the Eastern England SDE. An SDE is a highly-protected digital platform that allows approved researchers to access sensitive health data securely, ensuring patient confidentiality.

    Currently, genomic data used in research relies on opt-in consent, which limits how much data is available. A shift towards using the existing NHS opt out model (already used for other health data) for genomic research in an SDE, would allow much more data to be looked at, enabling faster, more impactful research.

    The Healthwatch report, Genomic Transformation Project: Community Engagement, captures the views of 85 patients and members of the public, gathered through focus groups and a regional public panel. It explores attitudes towards the use of genomic data within the Eastern England SDE and the consent around the use of that data.

    Findings:

    • Public support for using genomic data in research is strong, so long as safeguards, transparency and choice are in place

    Participants consistently highlighted the significant benefits of genomic research, particularly in improving outcomes for cancer and rare diseases and advancing medical breakthroughs.

    However, support depends on trust, security and transparency, with many noting they would want to see robust data protection in place and clear information about consent and how the data is used.

    • Public awareness of genomic research and SDEs is low

    Many participants had limited knowledge of how genomic data is used in research and were unfamiliar with SDEs.

    • Genomic data is seen as particularly sensitive

    Participants described genomic data as more sensitive than other types of health information, because of its unique connection to each individual and its capacity to reveal information about family members.

    The study found that while people were most comfortable with data being handled by trusted NHS organisations, there was significantly less trust in commercial and external bodies.

    It was also emphasised that any future contact about research should come through recognised NHS channels, such as GPs or hospitals.

    • Consent and choice remain key for patients

    The current opt-out model for NHS data was broadly accepted by participants, however this acceptance depends on people being clearly informed about the opt-out processes.

    Across all of the engagement, participants highlighted the need for better communication and greater transparency, with clear explanations of how their data is used, who has access to it and updates on what the research has achieved.

    Based on the findings Healthwatch Norfolk have made a series of recommendations, including:

    • Increase public awareness of genomic data use
    • Strengthen transparency and accountability
    • Make opt-out options clearer and easier to access
    • Demonstrate robust data security and governance
    • Use trusted NHS communication channels
    • Continue ongoing public engagement around the subject of genomics research and SDEs

    The findings show that there is clear public support for the use of genomic data in health research, however this support is not unconditional. It depends on maintaining public trust through strong safeguards and transparent processes. Prioritising openness, strengthening awareness, and continuing to involve patients and communities in decision-making can ensure that genomic research develops in a way that is both ethically robust and publicly supported.

    Download the full report here

    People across the East of England have shared their views on the use of genomic data for health research, recognising its potential to transform diagnosis, treatment and care, according to a new report commissioned by the Eastern England Secure Data Environment (SDE).

    Genomic medicine is the study of how the information contained within an individual’s DNA influences their health and wellbeing. This genetic information can help identify a person’s risk of developing certain conditions and provide insights into how they may respond to specific treatments. Advances in genomic science are transforming healthcare by enabling more accurate diagnoses, supporting earlier detection of disease, and facilitating more personalised approaches to treatment and care.

    To better understand public attitudes towards the use of genomic data in research, the Eastern England SDE commissioned Healthwatch Norfolk to lead a regional engagement project in partnership with Healthwatch Leicester and Leicestershire, Healthwatch Hertfordshire and Healthwatch Essex.

    The project explored people’s views on the use of DNA data generated through routine healthcare for research within the Eastern England SDE. An SDE is a highly-protected digital platform that allows approved researchers to access sensitive health data securely, ensuring patient confidentiality.

    Currently, genomic data used in research relies on opt-in consent, which limits how much data is available. A shift towards using the existing NHS opt out model (already used for other health data) for genomic research in an SDE, would allow much more data to be looked at, enabling faster, more impactful research.

    The Healthwatch report, Genomic Transformation Project: Community Engagement, captures the views of 85 patients and members of the public, gathered through focus groups and a regional public panel. It explores attitudes towards the use of genomic data within the Eastern England SDE and the consent around the use of that data.

    Findings:

    • Public support for using genomic data in research is strong, so long as safeguards, transparency and choice are in place

    Participants consistently highlighted the significant benefits of genomic research, particularly in improving outcomes for cancer and rare diseases and advancing medical breakthroughs.

    However, support depends on trust, security and transparency, with many noting they would want to see robust data protection in place and clear information about consent and how the data is used.

    • Public awareness of genomic research and SDEs is low

    Many participants had limited knowledge of how genomic data is used in research and were unfamiliar with SDEs.

    • Genomic data is seen as particularly sensitive

    Participants described genomic data as more sensitive than other types of health information, because of its unique connection to each individual and its capacity to reveal information about family members.

    The study found that while people were most comfortable with data being handled by trusted NHS organisations, there was significantly less trust in commercial and external bodies.

    It was also emphasised that any future contact about research should come through recognised NHS channels, such as GPs or hospitals.

    • Consent and choice remain key for patients

    The current opt-out model for NHS data was broadly accepted by participants, however this acceptance depends on people being clearly informed about the opt-out processes.

    Across all of the engagement, participants highlighted the need for better communication and greater transparency, with clear explanations of how their data is used, who has access to it and updates on what the research has achieved.

    Based on the findings Healthwatch Norfolk have made a series of recommendations, including:

    • Increase public awareness of genomic data use
    • Strengthen transparency and accountability
    • Make opt-out options clearer and easier to access
    • Demonstrate robust data security and governance
    • Use trusted NHS communication channels
    • Continue ongoing public engagement around the subject of genomics research and SDEs

    The findings show that there is clear public support for the use of genomic data in health research, however this support is not unconditional. It depends on maintaining public trust through strong safeguards and transparent processes. Prioritising openness, strengthening awareness, and continuing to involve patients and communities in decision-making can ensure that genomic research develops in a way that is both ethically robust and publicly supported.

    Download the full report here

  • The NHS Innovation Accelerator Fellowship Programme

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    Applications for the NHS Innovation Accelerator Fellowship Programme are now open, supporting the next generation of innovators in developing solutions that could transform people's lives and improve the systems that support them.

    Applications are now open for the 2027 cohort!

    Do you have an innovation with the potential to transform healthcare and the evidence to show it works?

    "We are looking for ambitious innovators ready to scale their impact across the NHS.

    For our 2027 cohort, we’re particularly interested in innovations that can contribute to priorities across access, productivity, modern service frameworks, women’s health and dementia."

    If you’re ready to take your innovation to the next level, find out more and apply now: https://nhsaccelerator.com/about-the-nia-programme/apply-for-nia-fellowship/

    📅 Applications close 27 September 2026

    Applications for the NHS Innovation Accelerator Fellowship Programme are now open, supporting the next generation of innovators in developing solutions that could transform people's lives and improve the systems that support them.

    Applications are now open for the 2027 cohort!

    Do you have an innovation with the potential to transform healthcare and the evidence to show it works?

    "We are looking for ambitious innovators ready to scale their impact across the NHS.

    For our 2027 cohort, we’re particularly interested in innovations that can contribute to priorities across access, productivity, modern service frameworks, women’s health and dementia."

    If you’re ready to take your innovation to the next level, find out more and apply now: https://nhsaccelerator.com/about-the-nia-programme/apply-for-nia-fellowship/

    📅 Applications close 27 September 2026

  • AI in the NHS 2026

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    AI in the NHS 2026: Online, Thursday 15 October 2026, 10.00–17.00


    An event from the Health Foundation.

    2026 is set to be a pivotal year for AI in the NHS, with important national strategies and regulatory reforms expected that will impact what kinds of technologies get used and how the health service adopts and oversees them.

    But turning the vision of an AI-enabled health system into reality won’t be straightforward. Our third annual AI event will bring together stakeholders from across the NHS, government, industry, academia and the charity sector to consider how the NHS can responsibly, safely and effectively implement AI at scale.

    This full day event will explore how to:

    • translate national strategy into real-world implementation
    • evaluate and scale AI tools rapidly, safely and effectively
    • build trust among clinicians, patients and the public
    • support the workforce through technological transformation
    • learn from leading international health systems already using AI at scale.

    Confirmed speakers include:

    • Dr Joseph Alderman, Postdoctoral Researcher in AI and Digital Health, University of Birmingham
    • Brian Anderson, Chief Executive, Coalition for Health AI (CHAI)
    • Dr Ricardo Baptista Leite, Chief Executive, HealthAI
    • Wonchul Cha, Chief Information Officer, Samsung Medical Centre, Korea
    • Dr Jennifer Dixon DBE, Chief Executive, The Health Foundation
    • Professor Mary Dixon-Woods, Director, THIS Institute
    • Saira Ghafur, Digital Health Lead, Institute of Global Health Innovation, Imperial and Co-Founder & CMO, Prova Health
    • Bob Klaber, Director of Strategy, Research & Innovation, Imperial College Healthcare NHS Trust
    • Davina Lim, Director, Future Systems & Innovation, Ministry of Health, Singapore
    • Ed Middleton, Interim Director of Strategy, MHRA
    • Madhumita Murgia, AI Editor, Financial Times
    • Micky Tripathi, Chief AI implementation officer, Mayo Clinic
    • Anna Thomas, Founding Director, Institute for the Future of Work

    Register for a place here: https://thehealthfoundation.zoom.us/webinar/register/3017824745512/WN_MQdBKUWRQ_6WQYTfJHNVwQ#/registration

    AI in the NHS 2026: Online, Thursday 15 October 2026, 10.00–17.00


    An event from the Health Foundation.

    2026 is set to be a pivotal year for AI in the NHS, with important national strategies and regulatory reforms expected that will impact what kinds of technologies get used and how the health service adopts and oversees them.

    But turning the vision of an AI-enabled health system into reality won’t be straightforward. Our third annual AI event will bring together stakeholders from across the NHS, government, industry, academia and the charity sector to consider how the NHS can responsibly, safely and effectively implement AI at scale.

    This full day event will explore how to:

    • translate national strategy into real-world implementation
    • evaluate and scale AI tools rapidly, safely and effectively
    • build trust among clinicians, patients and the public
    • support the workforce through technological transformation
    • learn from leading international health systems already using AI at scale.

    Confirmed speakers include:

    • Dr Joseph Alderman, Postdoctoral Researcher in AI and Digital Health, University of Birmingham
    • Brian Anderson, Chief Executive, Coalition for Health AI (CHAI)
    • Dr Ricardo Baptista Leite, Chief Executive, HealthAI
    • Wonchul Cha, Chief Information Officer, Samsung Medical Centre, Korea
    • Dr Jennifer Dixon DBE, Chief Executive, The Health Foundation
    • Professor Mary Dixon-Woods, Director, THIS Institute
    • Saira Ghafur, Digital Health Lead, Institute of Global Health Innovation, Imperial and Co-Founder & CMO, Prova Health
    • Bob Klaber, Director of Strategy, Research & Innovation, Imperial College Healthcare NHS Trust
    • Davina Lim, Director, Future Systems & Innovation, Ministry of Health, Singapore
    • Ed Middleton, Interim Director of Strategy, MHRA
    • Madhumita Murgia, AI Editor, Financial Times
    • Micky Tripathi, Chief AI implementation officer, Mayo Clinic
    • Anna Thomas, Founding Director, Institute for the Future of Work

    Register for a place here: https://thehealthfoundation.zoom.us/webinar/register/3017824745512/WN_MQdBKUWRQ_6WQYTfJHNVwQ#/registration

  • The Single Patient Record in England – vision and reality

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    use MY data is hosting a public webinar on the single patient record – free to attend and open to all! Read below for more information:

    Free, public webinar - Wednesday, 30 September 2026, 13:30 to 15:00

    On 30 September, 13:30 to 15:00 use MY data will host a webinar on the Single Patient Record (SPR). This is the latest in our series of public events focussed on the use of patient data and designed to bring together a wide range of voices, under our strategy of positive engagement.

    We have heard direct from use MY data Members and members of the public that there is confusion about the role and purpose of the SPR, which is leading to a loss of confidence in the use of patient data.

    The SPR is being conflated with the Federated Data Platform (FDP) and this has already led to opt-outs for research & planning in England. We do not want opt-outs to increase as a result of the confusion. With this webinar we want to bring clarity, transparency and above all, patient voices to the discussion.

    Although the SPR is an England-only initiative, our webinar will have a UK focus. We will be hearing from the devolved nations about their own work to unify patient records and what England could learn from their experiences.

    Please join us and bring your voice to the discussion!

    Sign up to webinar here: The Single Patient Record in England – vision and reality

    use MY data is hosting a public webinar on the single patient record – free to attend and open to all! Read below for more information:

    Free, public webinar - Wednesday, 30 September 2026, 13:30 to 15:00

    On 30 September, 13:30 to 15:00 use MY data will host a webinar on the Single Patient Record (SPR). This is the latest in our series of public events focussed on the use of patient data and designed to bring together a wide range of voices, under our strategy of positive engagement.

    We have heard direct from use MY data Members and members of the public that there is confusion about the role and purpose of the SPR, which is leading to a loss of confidence in the use of patient data.

    The SPR is being conflated with the Federated Data Platform (FDP) and this has already led to opt-outs for research & planning in England. We do not want opt-outs to increase as a result of the confusion. With this webinar we want to bring clarity, transparency and above all, patient voices to the discussion.

    Although the SPR is an England-only initiative, our webinar will have a UK focus. We will be hearing from the devolved nations about their own work to unify patient records and what England could learn from their experiences.

    Please join us and bring your voice to the discussion!

    Sign up to webinar here: The Single Patient Record in England – vision and reality

  • IRIS BEAT (Improving Retention In Studies - BEhavioural Activation Toolkit)

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    Shared by Beth Fordham, a health psychologist at the Kadoorie Institute of Trauma, Emergency and Critical Care in the University of Oxford.

    "We run clinical trials to decide how best to care for people when they experience a trauma, emergency or critical injury. We have looked at our data over the past few years and noticed that people who live in areas of high social deprivation are more likely to drop out of clinical trial research. This means that the voices and feedback of this community are under-served and not represented in the healthcare decisions for trauma, emergency and critical care."

    "My project would like to hear from people who live in areas of high socioeconomic deprivation and understand if we can change the way that clinical trial research is conducted to make it easier for people to remain in clinical trials and make the findings more representative of the UK population."

    "The project is called IRIS-BEAT (Improving Retention In Studies - BEhavioural Activation Toolkit). We used the Governmental Indices of Multiple Deprivation map tool to identify geographical locations of high deprivation, such as Gorleston. We would like to link up with a community stakeholder. The idea is for the community stakeholder to recruit up to ten people from the local community to attend a focus group. We would like the community stakeholder to facilitate the focus group, with support from our researcher. The idea behind it is that, if there is a mistrust of healthcare systems and/or academic institutions, then this might provide a barrier to open discussion in the focus group. If a trusted local champion, i.e. a foodbank coordinator, was leading the group this might invite more open and important discussions."

    "We anticipate running these groups from January 2027 in a local venue, which is easy for people from the community to reach, or if preferrable, we can run them as online focus groups."

    "We would like to reimburse the community stakeholder for their time contributing to this research. In line with national guidance, we offer £27.50 per hour."

    For more information, please email beth.fordham@ndorms.ox.ac.uk

    Shared by Beth Fordham, a health psychologist at the Kadoorie Institute of Trauma, Emergency and Critical Care in the University of Oxford.

    "We run clinical trials to decide how best to care for people when they experience a trauma, emergency or critical injury. We have looked at our data over the past few years and noticed that people who live in areas of high social deprivation are more likely to drop out of clinical trial research. This means that the voices and feedback of this community are under-served and not represented in the healthcare decisions for trauma, emergency and critical care."

    "My project would like to hear from people who live in areas of high socioeconomic deprivation and understand if we can change the way that clinical trial research is conducted to make it easier for people to remain in clinical trials and make the findings more representative of the UK population."

    "The project is called IRIS-BEAT (Improving Retention In Studies - BEhavioural Activation Toolkit). We used the Governmental Indices of Multiple Deprivation map tool to identify geographical locations of high deprivation, such as Gorleston. We would like to link up with a community stakeholder. The idea is for the community stakeholder to recruit up to ten people from the local community to attend a focus group. We would like the community stakeholder to facilitate the focus group, with support from our researcher. The idea behind it is that, if there is a mistrust of healthcare systems and/or academic institutions, then this might provide a barrier to open discussion in the focus group. If a trusted local champion, i.e. a foodbank coordinator, was leading the group this might invite more open and important discussions."

    "We anticipate running these groups from January 2027 in a local venue, which is easy for people from the community to reach, or if preferrable, we can run them as online focus groups."

    "We would like to reimburse the community stakeholder for their time contributing to this research. In line with national guidance, we offer £27.50 per hour."

    For more information, please email beth.fordham@ndorms.ox.ac.uk

  • PPI Training Sessions for Research staff in 2026

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    These sessions will be held via Zoom. They are free for NIHR, NHS, academic or charity-funded researchers, students or staff in the UK. Please use a work-related email to register.

    Please email cuh.ppi@nhs.net to book your place, and we look forward to seeing you there!

    Introduction to PPI for Researchers Weds 12 Aug 10.30 am-12.30 pm

    This introductory session covers what PPI is, how it can help research and tips for doing it well. The session also includes one of our CUH PPI Panel members sharing their experiences of getting involved, and a PPI case study from a local researcher.

    How to build and maintain PPI groups Thurs 27 Aug 1.00 pm-3.00 pm

    Forming a PPI group can be an effective way of involving people in your research. This session looks at the different ways a PPI group can work, how to recruit group members and how to keep them involved throughout the lifecycle of your project. Includes one of our CUH PPI panel members and a researcher who will share their experiences.

    PPI Toolkit: Ways to involve the public in research Tues 22 Sept 10.30 am-12.30 pm

    This session looks at some of the methods that can be used for PPI to help researchers find ways that might be suitable for their project. The session covers activities that can be used throughout the research cycle, with examples from research taking place on campus.

    Avoiding tokenism - supporting meaningful PPI Thurs 8 Oct 1.00 pm-3.00 pm Researchers are routinely advised to avoid ‘tokenism’ or ‘tickbox’ PPIE - but what kinds of attitudes, approaches, actions and activities make public contributors feel valued for their contributions and experience? We will look at practical ways to ensure that PPIE is a meaningful and positive experience for all involved.

    Planning Inclusive PPI Weds 28 Oct 9.30 am-12.00 pm

    To maximise the impact of PPI and improve research for everyone, we need to involve a diverse range of people and communities. This session encourages participants to think about ways to design inclusive PPI opportunities that work for the communities they wish to involve. We will look at best practice and examples for relationship building, recruitment, planning and follow up.

    Evaluating PPI Tues 17 Nov 2.00 pm-4.00 pm

    PPI is seen as essential to improving the value and relevance of research - but how can we evaluate the impact that our PPI has had, to know whether it has worked well and how it can be improved in the future? In this session we will look at why traditional evaluation is difficult for PPI, how best to plan for success, and monitoring and recording your impact.

    Using PPI to help communicate your research Thurs 10 Dec 10.00 am-11.30 am

    Join us for this interactive session as we look at writing for lay audiences, other formats for communication and tools for sharing our research and involvement opportunities. How patients and the public can help write, produce and share information about your research in an accessible way.

    Please email cuh.ppi@nhs.net to book your place, and we look forward to seeing you there!

    These sessions will be held via Zoom. They are free for NIHR, NHS, academic or charity-funded researchers, students or staff in the UK. Please use a work-related email to register.

    Please email cuh.ppi@nhs.net to book your place, and we look forward to seeing you there!

    Introduction to PPI for Researchers Weds 12 Aug 10.30 am-12.30 pm

    This introductory session covers what PPI is, how it can help research and tips for doing it well. The session also includes one of our CUH PPI Panel members sharing their experiences of getting involved, and a PPI case study from a local researcher.

    How to build and maintain PPI groups Thurs 27 Aug 1.00 pm-3.00 pm

    Forming a PPI group can be an effective way of involving people in your research. This session looks at the different ways a PPI group can work, how to recruit group members and how to keep them involved throughout the lifecycle of your project. Includes one of our CUH PPI panel members and a researcher who will share their experiences.

    PPI Toolkit: Ways to involve the public in research Tues 22 Sept 10.30 am-12.30 pm

    This session looks at some of the methods that can be used for PPI to help researchers find ways that might be suitable for their project. The session covers activities that can be used throughout the research cycle, with examples from research taking place on campus.

    Avoiding tokenism - supporting meaningful PPI Thurs 8 Oct 1.00 pm-3.00 pm Researchers are routinely advised to avoid ‘tokenism’ or ‘tickbox’ PPIE - but what kinds of attitudes, approaches, actions and activities make public contributors feel valued for their contributions and experience? We will look at practical ways to ensure that PPIE is a meaningful and positive experience for all involved.

    Planning Inclusive PPI Weds 28 Oct 9.30 am-12.00 pm

    To maximise the impact of PPI and improve research for everyone, we need to involve a diverse range of people and communities. This session encourages participants to think about ways to design inclusive PPI opportunities that work for the communities they wish to involve. We will look at best practice and examples for relationship building, recruitment, planning and follow up.

    Evaluating PPI Tues 17 Nov 2.00 pm-4.00 pm

    PPI is seen as essential to improving the value and relevance of research - but how can we evaluate the impact that our PPI has had, to know whether it has worked well and how it can be improved in the future? In this session we will look at why traditional evaluation is difficult for PPI, how best to plan for success, and monitoring and recording your impact.

    Using PPI to help communicate your research Thurs 10 Dec 10.00 am-11.30 am

    Join us for this interactive session as we look at writing for lay audiences, other formats for communication and tools for sharing our research and involvement opportunities. How patients and the public can help write, produce and share information about your research in an accessible way.

    Please email cuh.ppi@nhs.net to book your place, and we look forward to seeing you there!

  • Spark! Singing for Parkinson’s

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    This event aims to bring together people living with Parkinson's, loved ones, clinicians, researchers and artists to share our recent findings of the impact of singing on facial mobility and expression in Parkinson’s.

    This unique opportunity will connect stakeholders from clinical and artistic backgrounds to share discipline specific strategies for preserving facial mobility in Parkinson’s, and to spark some fruitful connections and bring about new opportunities for collaborations as our research moves forward.

    Details

    |
    Duration: 6 hours
    Venue: The O’Hare Learning Centre, Snape Maltings, Snape Suffolk IP17 1SP
    Tickets: Free; but please book

    Schedule

    10am – 10.30am Arrivals and networking (optional, refreshments provided)

    10.30am – 10.35am Welcome

    10.35am – 11.15am East Suffolk Skylarks singing session

    11.15am – 12.15pm Presentation of research

    12.15pm – 12.35pm Break

    12.35pm – 1.15pm Panel discussion
    • Dr Abigail Webb, Clinical Research Fellow
    • Sheeba Mason, Parkinson’s Nurse Consultant
    • Steph Wakeman, Artist
    • Speech and Language Therapist
    • Research Participant

    1.15pm – 2.15pm Lunch (hot meal provided)

    2.15pm – 2.45pm Talk: an overview on the benefits for singing and Parkinson's

    2.45pm – 3pm Introduction to afternoon discussions

    3pm – 4pm Knowledge exchange sessions

    4pm – 4.30pm Conclusions

    The research has been conducted in partnership with Britten Pears Arts, University of Suffolk, the East Suffolk and North Essex NHS Foundation Trust and University of Essex.

    East Suffolk Skylarks is generously supported by The Linbury Trust and The Suffolk Giving Grantmaking Programme through Suffolk Community Foundation.

    The research project was funded by Colchester and Ipswich Hospitals Charity fund.

    For further information please contact:

    Lucy-Eve Munn, Head of Later Life Programmes at Britten Pears Arts
    Lmunn@brittenpearsarts.org
    Dr Abbi Webb, Clinical Research Fellow, Institute of Health and Wellbeing at University of Suffolk
    A.Webb6@uos.ac.uk

    If you would like to have a stand on the day to promote your services, please contact Lucy-Eve Munn for further details.

    Book your place using this link: https://www.brittenpearsarts.org/events/spark-singing-for-parkinsons

    This event aims to bring together people living with Parkinson's, loved ones, clinicians, researchers and artists to share our recent findings of the impact of singing on facial mobility and expression in Parkinson’s.

    This unique opportunity will connect stakeholders from clinical and artistic backgrounds to share discipline specific strategies for preserving facial mobility in Parkinson’s, and to spark some fruitful connections and bring about new opportunities for collaborations as our research moves forward.

    Details

    |
    Duration: 6 hours
    Venue: The O’Hare Learning Centre, Snape Maltings, Snape Suffolk IP17 1SP
    Tickets: Free; but please book

    Schedule

    10am – 10.30am Arrivals and networking (optional, refreshments provided)

    10.30am – 10.35am Welcome

    10.35am – 11.15am East Suffolk Skylarks singing session

    11.15am – 12.15pm Presentation of research

    12.15pm – 12.35pm Break

    12.35pm – 1.15pm Panel discussion
    • Dr Abigail Webb, Clinical Research Fellow
    • Sheeba Mason, Parkinson’s Nurse Consultant
    • Steph Wakeman, Artist
    • Speech and Language Therapist
    • Research Participant

    1.15pm – 2.15pm Lunch (hot meal provided)

    2.15pm – 2.45pm Talk: an overview on the benefits for singing and Parkinson's

    2.45pm – 3pm Introduction to afternoon discussions

    3pm – 4pm Knowledge exchange sessions

    4pm – 4.30pm Conclusions

    The research has been conducted in partnership with Britten Pears Arts, University of Suffolk, the East Suffolk and North Essex NHS Foundation Trust and University of Essex.

    East Suffolk Skylarks is generously supported by The Linbury Trust and The Suffolk Giving Grantmaking Programme through Suffolk Community Foundation.

    The research project was funded by Colchester and Ipswich Hospitals Charity fund.

    For further information please contact:

    Lucy-Eve Munn, Head of Later Life Programmes at Britten Pears Arts
    Lmunn@brittenpearsarts.org
    Dr Abbi Webb, Clinical Research Fellow, Institute of Health and Wellbeing at University of Suffolk
    A.Webb6@uos.ac.uk

    If you would like to have a stand on the day to promote your services, please contact Lucy-Eve Munn for further details.

    Book your place using this link: https://www.brittenpearsarts.org/events/spark-singing-for-parkinsons

  • Understanding views of the impacts of hot weather on pregnancy and newborn health in England

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    Understanding views of the impacts of hot weather on pregnancy and newborn health in England

    Summary
    This survey aims to better understand how people view hot weather in England during pregnancy and the newborn period. The newborn period is the month after birth. The information you provide will help develop ways to reduce the impacts of hot weather during pregnancy and the newborn period. This includes improving the support, guidance, and resources for pregnant people, their partners, and caregivers in England.

    Who
    People aged 16 years and over living in England who are in any of the following groups:

    • are pregnant or have been pregnant in the last 12 months
    • are a parent, guardian, or carer of a baby aged 12 months or under (not as part of paid work)
    • have been a parent, guardian, or carer of a baby aged 12 months or under in the last 12 months (not as part of paid work)
    • are a partner of any of the above. Partner refers to a spouse (husband, wife), civil partner, boyfriend, girlfriend or someone you consider to be your partner.

    What
    Online survey (20-30 mins). They are interested in your views on hot weather during pregnancy, hot weather when caring for a newborn baby, your experiences of hot weather during pregnancy or caring for a newborn (if applicable) and any actions you have taken during periods of hot weather during pregnancy or caring for a newborn (if applicable)

    A link to the online survey is here: https://bit.ly/hotweather-survey

    Under the section "Where did you hear about the study?" please ask them to select "East of England Community Health and Care Trust"

    Understanding views of the impacts of hot weather on pregnancy and newborn health in England

    Summary
    This survey aims to better understand how people view hot weather in England during pregnancy and the newborn period. The newborn period is the month after birth. The information you provide will help develop ways to reduce the impacts of hot weather during pregnancy and the newborn period. This includes improving the support, guidance, and resources for pregnant people, their partners, and caregivers in England.

    Who
    People aged 16 years and over living in England who are in any of the following groups:

    • are pregnant or have been pregnant in the last 12 months
    • are a parent, guardian, or carer of a baby aged 12 months or under (not as part of paid work)
    • have been a parent, guardian, or carer of a baby aged 12 months or under in the last 12 months (not as part of paid work)
    • are a partner of any of the above. Partner refers to a spouse (husband, wife), civil partner, boyfriend, girlfriend or someone you consider to be your partner.

    What
    Online survey (20-30 mins). They are interested in your views on hot weather during pregnancy, hot weather when caring for a newborn baby, your experiences of hot weather during pregnancy or caring for a newborn (if applicable) and any actions you have taken during periods of hot weather during pregnancy or caring for a newborn (if applicable)

    A link to the online survey is here: https://bit.ly/hotweather-survey

    Under the section "Where did you hear about the study?" please ask them to select "East of England Community Health and Care Trust"

  • Exploring Impact from Inclusive Knowledge Mobilisation Webinar

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    This interactive webinar will explore how inclusive approaches to knowledge mobilisation can support the translation of evidence into practice, improve outcomes for communities, and maximise the impact of research and innovation.

    During the session, we will hear perspectives from:

    • NIHR on the importance of impact across the research landscape
    • NICE on the journey from evidence and guidance development through to implementation and real-world impact
    • Public contributors sharing lived experience perspectives on impact
    • Knowledge Mobilisation Fellows discussing their experiences of generating impact through their work
    • The wider research and health community on the opportunities and challenges involved in achieving meaningful impact

    The webinar will also provide an opportunity to:

    • Explore what impact means across different settings and communities
    • Discuss barriers and enablers to achieving impact
    • Learn from examples of successful knowledge mobilisation and partnership working
    • Connect with colleagues from across research, health, care and public involvement communities
    • Build new relationships and collaborations

    The first part of the webinar will consist of presentations from invited speakers, followed by facilitated small-group discussions designed to encourage conversation, networking and shared learning.

    Whether you are new to knowledge mobilisation or have extensive experience of translating evidence into practice, we welcome you to join the conversation.

    Registration link here: Exploring Impact from Inclusive Knowledge Mobilisation Webinar



    This interactive webinar will explore how inclusive approaches to knowledge mobilisation can support the translation of evidence into practice, improve outcomes for communities, and maximise the impact of research and innovation.

    During the session, we will hear perspectives from:

    • NIHR on the importance of impact across the research landscape
    • NICE on the journey from evidence and guidance development through to implementation and real-world impact
    • Public contributors sharing lived experience perspectives on impact
    • Knowledge Mobilisation Fellows discussing their experiences of generating impact through their work
    • The wider research and health community on the opportunities and challenges involved in achieving meaningful impact

    The webinar will also provide an opportunity to:

    • Explore what impact means across different settings and communities
    • Discuss barriers and enablers to achieving impact
    • Learn from examples of successful knowledge mobilisation and partnership working
    • Connect with colleagues from across research, health, care and public involvement communities
    • Build new relationships and collaborations

    The first part of the webinar will consist of presentations from invited speakers, followed by facilitated small-group discussions designed to encourage conversation, networking and shared learning.

    Whether you are new to knowledge mobilisation or have extensive experience of translating evidence into practice, we welcome you to join the conversation.

    Registration link here: Exploring Impact from Inclusive Knowledge Mobilisation Webinar



Page last updated: 27 Aug 2026, 10:30 AM