Health and Care Research



What is health and care research and why is it important?

Research is a systematic investigation that creates new knowledge or deepens our knowledge about a problem or issue. It involves designing the study’s approach, planning the most appropriate methods to gather data, recruiting participants ethically, and analysing the data using established methods that provide valid and reliable results.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


NHS England’s Long-Term Plan states an ambition to increase the numbers of people participating in research to 1 million people registering their interest by 2023/24. The government has set out the UK research vision (Saving and Improving Lives: The Future of UK Clinical Research Delivery - GOV.UK (www.gov.uk)) and has outlined the need to build on the learning from the COVID-19 pandemic, ensuring that NHS England has a strong commitment to increasing public participation in research. The success and high profile of public interest in research has been evidenced in the COVID-19 vaccine and treatment programmes. NHS England are working with other health sector partners to ensure research becomes an increasingly integral aspect of healthcare provision.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research in Suffolk and North East Essex

The ‘Community Voices in Research’ programme, funded by NHS England and developed in partnership with NHS Suffolk and North East Essex Integrated Care Board, aims to tackle the under-representation in research among diverse groups and communities in Suffolk and North East Essex, by increasing awareness and motivation to participate in research.


Community-led organisations in Suffolk and North East Essex were funded and trained to become community research champions. By facilitating conversations about health research amongst members of their community the aim was to:


  • understand what research means to different communities.
  • discover what areas of research are a priority for different communities.
  • understand the barriers people face engaging in health research.
  • discovering how these barriers can be overcome.


The programme enabled us to gather insight from an extensive range of communities and in total the 19 projects held over 1,000 conversations with people who face barriers to participating in research.


The Research Engagement Network (REN)


The Suffolk and North East Essex Research Engagement Network is coordinated by the Suffolk and North East Essex Integrated Care Board (SNEE ICB), in collaboration with Thinklusive.

This initiative creates a platform for researchers to exchange experiences, foster learning and support underserved groups in research.

The Network:

  • Supports the ICS to foster a local research environment that is supportive and inclusive for our diverse communities.
  • Builds trusting, mutually beneficial relationships with the community.
  • Listens to and understands local communities better.
  • Collaborates with community members and organisations to make research more inclusive and representative.
  • Highlights the need for making reasonable adjustments within research happening locally.
  • Provides a check and challenge to local research teams to create more accessible research.
  • Offers input, ideas, and recommendations to teams at all stages of the research process.

Your commitment as a Network member would be to:

  • Attend 1-hour bi-monthly meetings (a combination of online and in person).
  • Join the Let’s Talk SNEE group to talk to each other, share examples of best practice, provide secure space to store information and documents.
  • Be open to collaborating with members of the REN Network.
  • Share information regularly across your personal and professional local networks.

If you are interested in getting involved with our Research Engagement Network, then please fill in the form below and one of the team will get in touch with you.


Get Involved - Be part of Research

What is Be Part of Research?

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.


You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you.


Be Part of Research is run by the National Institute for Health and Care Research (NIHR), in collaboration with the NHS and devolved administrations in Scotland, Wales and Northern Ireland. The mission of the NIHR is to improve the health and wealth of the nation through research. Be Part of Research is funded by the UK government, through the Department of Health and Social Care (DHSC).


Why take part in research?

Every time someone receives treatment for a health condition, it's because of the many people who take part in health and care research.


Research is key to developing new treatments, finding better ways to manage health conditions and providing better care. Or preventing people from developing conditions in the first place. Without research, there would be no Covid vaccines, or no new treatments for cancer. But it's the people who take part in health research who make these vital discoveries possible. By taking part, you can help give people healthier lives - now, and in the future. It's easy to get involved - simply register with Be Part of Research at https://bepartofresearch.nihr.ac.uk/join


There are many ways you can get involved:

  • Click on the Subscribe button to the right of the screen to stay informed about health and care research in Suffolk and North East Essex.
  • Click on the Register button and participate on Let's Talk SNEE to stay informed about wider health and social care in Suffolk and North East Essex.
  • Find out more about our Suffolk and North East Essex Research Engagement Network by completing the form below.



What is health and care research and why is it important?

Research is a systematic investigation that creates new knowledge or deepens our knowledge about a problem or issue. It involves designing the study’s approach, planning the most appropriate methods to gather data, recruiting participants ethically, and analysing the data using established methods that provide valid and reliable results.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


NHS England’s Long-Term Plan states an ambition to increase the numbers of people participating in research to 1 million people registering their interest by 2023/24. The government has set out the UK research vision (Saving and Improving Lives: The Future of UK Clinical Research Delivery - GOV.UK (www.gov.uk)) and has outlined the need to build on the learning from the COVID-19 pandemic, ensuring that NHS England has a strong commitment to increasing public participation in research. The success and high profile of public interest in research has been evidenced in the COVID-19 vaccine and treatment programmes. NHS England are working with other health sector partners to ensure research becomes an increasingly integral aspect of healthcare provision.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research in Suffolk and North East Essex

The ‘Community Voices in Research’ programme, funded by NHS England and developed in partnership with NHS Suffolk and North East Essex Integrated Care Board, aims to tackle the under-representation in research among diverse groups and communities in Suffolk and North East Essex, by increasing awareness and motivation to participate in research.


Community-led organisations in Suffolk and North East Essex were funded and trained to become community research champions. By facilitating conversations about health research amongst members of their community the aim was to:


  • understand what research means to different communities.
  • discover what areas of research are a priority for different communities.
  • understand the barriers people face engaging in health research.
  • discovering how these barriers can be overcome.


The programme enabled us to gather insight from an extensive range of communities and in total the 19 projects held over 1,000 conversations with people who face barriers to participating in research.


The Research Engagement Network (REN)


The Suffolk and North East Essex Research Engagement Network is coordinated by the Suffolk and North East Essex Integrated Care Board (SNEE ICB), in collaboration with Thinklusive.

This initiative creates a platform for researchers to exchange experiences, foster learning and support underserved groups in research.

The Network:

  • Supports the ICS to foster a local research environment that is supportive and inclusive for our diverse communities.
  • Builds trusting, mutually beneficial relationships with the community.
  • Listens to and understands local communities better.
  • Collaborates with community members and organisations to make research more inclusive and representative.
  • Highlights the need for making reasonable adjustments within research happening locally.
  • Provides a check and challenge to local research teams to create more accessible research.
  • Offers input, ideas, and recommendations to teams at all stages of the research process.

Your commitment as a Network member would be to:

  • Attend 1-hour bi-monthly meetings (a combination of online and in person).
  • Join the Let’s Talk SNEE group to talk to each other, share examples of best practice, provide secure space to store information and documents.
  • Be open to collaborating with members of the REN Network.
  • Share information regularly across your personal and professional local networks.

If you are interested in getting involved with our Research Engagement Network, then please fill in the form below and one of the team will get in touch with you.


Get Involved - Be part of Research

What is Be Part of Research?

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.


You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you.


Be Part of Research is run by the National Institute for Health and Care Research (NIHR), in collaboration with the NHS and devolved administrations in Scotland, Wales and Northern Ireland. The mission of the NIHR is to improve the health and wealth of the nation through research. Be Part of Research is funded by the UK government, through the Department of Health and Social Care (DHSC).


Why take part in research?

Every time someone receives treatment for a health condition, it's because of the many people who take part in health and care research.


Research is key to developing new treatments, finding better ways to manage health conditions and providing better care. Or preventing people from developing conditions in the first place. Without research, there would be no Covid vaccines, or no new treatments for cancer. But it's the people who take part in health research who make these vital discoveries possible. By taking part, you can help give people healthier lives - now, and in the future. It's easy to get involved - simply register with Be Part of Research at https://bepartofresearch.nihr.ac.uk/join


There are many ways you can get involved:

  • Click on the Subscribe button to the right of the screen to stay informed about health and care research in Suffolk and North East Essex.
  • Click on the Register button and participate on Let's Talk SNEE to stay informed about wider health and social care in Suffolk and North East Essex.
  • Find out more about our Suffolk and North East Essex Research Engagement Network by completing the form below.

  • Storytelling for public contributors

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    Storytelling for public contributors

    Sharing details of an upcoming webinar from NIHR RSS Specialist Centre for Public Health on storytelling for public contributors.

    This opportunity is for people who...

    • Are public contributors or interested in getting involved in research

    • Want to develop skills in storytelling and communicating their connection with research

    Who are NIHR RSS Specialist Centre for Public Health?

    The NIHR Research Support Service (RSS) Specialist Centre for Public Health provides expert guidance and support for researchers working in public health. They also offer training and development opportunities for public contributors involved in research.

    About the webinar

    This free, online webinar, Storytelling for Public Contributors, focuses on helping public contributors build confidence in speaking about their involvement in research. Led by Duncan Yellowlees, the session will explore techniques for:

    • Telling the story behind your connection to research

    • Making your contributions engaging and relatable

    • Ensuring audiences understand the projects you are part of

    The session includes guidance on connecting with audiences, structuring your thoughts, and presenting your lived experience clearly.

    When and where

    11 February, 10.00-11.15, online. Book your place here: https://tinyurl.com/35h7u37m

    Storytelling for public contributors

    Sharing details of an upcoming webinar from NIHR RSS Specialist Centre for Public Health on storytelling for public contributors.

    This opportunity is for people who...

    • Are public contributors or interested in getting involved in research

    • Want to develop skills in storytelling and communicating their connection with research

    Who are NIHR RSS Specialist Centre for Public Health?

    The NIHR Research Support Service (RSS) Specialist Centre for Public Health provides expert guidance and support for researchers working in public health. They also offer training and development opportunities for public contributors involved in research.

    About the webinar

    This free, online webinar, Storytelling for Public Contributors, focuses on helping public contributors build confidence in speaking about their involvement in research. Led by Duncan Yellowlees, the session will explore techniques for:

    • Telling the story behind your connection to research

    • Making your contributions engaging and relatable

    • Ensuring audiences understand the projects you are part of

    The session includes guidance on connecting with audiences, structuring your thoughts, and presenting your lived experience clearly.

    When and where

    11 February, 10.00-11.15, online. Book your place here: https://tinyurl.com/35h7u37m

  • Involving Children and Young People - Learning from Co-produced evaluations

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    Webinar: Evaluating Public Involvement with children and young people 🌟

    Come and hear from the University of Hertfordshire young people's advisory group and researchers working with them at Webinar #4 of the NIHR (National Institute for Health and Care Research) ARC National Importance of Public Involvement in Research Webinar Series: Involving Children and Young People: Learning from co-produced evaluations
    Online, 17 February 2026, 12.00-13.30.


    Presenters: , Helen Abnett, Lauren Denyer and members of the CRIPACC young people's advisory group (Herts YPAG).
    Chaired by Stan Papoulias and facilitated by Elspeth Mathie.

    More information and booking: https://lnkd.in/e4kFdWh4

    Information on the wider series and recordings of previous webinars: https://lnkd.in/eYEiR7qD

    Webinar organised by NIHR ARC East of England PenARC (NIHR ARC South West Peninsula) NIHR Applied Research Collaboration (ARC) South London


    Webinar: Evaluating Public Involvement with children and young people 🌟

    Come and hear from the University of Hertfordshire young people's advisory group and researchers working with them at Webinar #4 of the NIHR (National Institute for Health and Care Research) ARC National Importance of Public Involvement in Research Webinar Series: Involving Children and Young People: Learning from co-produced evaluations
    Online, 17 February 2026, 12.00-13.30.


    Presenters: , Helen Abnett, Lauren Denyer and members of the CRIPACC young people's advisory group (Herts YPAG).
    Chaired by Stan Papoulias and facilitated by Elspeth Mathie.

    More information and booking: https://lnkd.in/e4kFdWh4

    Information on the wider series and recordings of previous webinars: https://lnkd.in/eYEiR7qD

    Webinar organised by NIHR ARC East of England PenARC (NIHR ARC South West Peninsula) NIHR Applied Research Collaboration (ARC) South London


  • Experiences of Diagnosis (PREM Study)

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    Have you received a mental health diagnosis?

    Sharing research from Norfolk and Suffolk NHS Foundation Trust (NSFT):

    "We are looking for people who have received a mental health diagnosis from a healthcare professional/provider when they were 18 years old or above. If this sounds like you then we would love to hear from you!"

    "NSFT Researchers, along with partners at the University of Ottawa, are developing a questionnaire to measure how people experience the mental health diagnosis process. We are recruiting people to help us develop this questionnaire. This would involve completing a series of online questions, which should take 20-30 minutes."

    "You will receive a £5 Amazon voucher in return for your participation."

    "Participants can be staff members who have received a diagnosis, loved ones or your service users."

    If you’re interested to find out more, and take the survey, please click here Research Study: Development of Mental Health Diagnosis Patient Reported Experience Measure

    "Alternatively, send an email at researchinfo@nsft.nhs.uk quoting ‘Diagnosis Measure’ and the team will be in touch with more information.

    The PREM Study is sponsored by Norfolk and Suffolk NHS Foundation Trust in the UK, and funded by the Canadian Institutes of Health Research.


    Have you received a mental health diagnosis?

    Sharing research from Norfolk and Suffolk NHS Foundation Trust (NSFT):

    "We are looking for people who have received a mental health diagnosis from a healthcare professional/provider when they were 18 years old or above. If this sounds like you then we would love to hear from you!"

    "NSFT Researchers, along with partners at the University of Ottawa, are developing a questionnaire to measure how people experience the mental health diagnosis process. We are recruiting people to help us develop this questionnaire. This would involve completing a series of online questions, which should take 20-30 minutes."

    "You will receive a £5 Amazon voucher in return for your participation."

    "Participants can be staff members who have received a diagnosis, loved ones or your service users."

    If you’re interested to find out more, and take the survey, please click here Research Study: Development of Mental Health Diagnosis Patient Reported Experience Measure

    "Alternatively, send an email at researchinfo@nsft.nhs.uk quoting ‘Diagnosis Measure’ and the team will be in touch with more information.

    The PREM Study is sponsored by Norfolk and Suffolk NHS Foundation Trust in the UK, and funded by the Canadian Institutes of Health Research.


  • CD3: Cancer Data-Driven Detection programme

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    CD3 Patient and Public Partnership is looking for members of the public and professionals from across the UK to join our CD3 Patient and Public Partnership.

    This partnership plays a crucial role in ensuring that CD3 research reflects the lived experiences of people affected by cancer and has the greatest possible impact in the communities where it matters most.

    If you have any questions, please contact Jacob Matthews and the PPIE team at Cambridge University at PPIE@psychol.cam.ac.uk

    If you are interested in joining, please complete our expression of interest form by following the link below.

    https://cambridge.eu.qualtrics.com/jfe/form/SV_eu1WBrCegPIW486

    CD3 Patient and Public Partnership is looking for members of the public and professionals from across the UK to join our CD3 Patient and Public Partnership.

    This partnership plays a crucial role in ensuring that CD3 research reflects the lived experiences of people affected by cancer and has the greatest possible impact in the communities where it matters most.

    If you have any questions, please contact Jacob Matthews and the PPIE team at Cambridge University at PPIE@psychol.cam.ac.uk

    If you are interested in joining, please complete our expression of interest form by following the link below.

    https://cambridge.eu.qualtrics.com/jfe/form/SV_eu1WBrCegPIW486

  • Impact of electronic patient records (EPRs) on hospitals within the NHS

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    Impact of electronic patient records (EPRs) on hospitals within the NHS

    The Health Foundation is conducting a project to understand the impact of electronic patient records (EPRs) on hospitals within the NHS.

    “We would like to invite you to a one-hour phone call to discuss your views and experiences with EPRs.

    In particular, we are interested in:

    • How EPRs affect the accuracy and completeness of information in your medical record
    • Whether EPRs influence how quickly you are seen or receive treatment

    We are hoping to speak to people who have had a hospital appointment within the last 3 months in a hospital that uses electronic patient records.

    We would like to speak to individuals in January 2026.

    If you would like to participate or learn more, please email Sarah Opie-Martin: sarah.opie-martin@health.org.uk

    Impact of electronic patient records (EPRs) on hospitals within the NHS

    The Health Foundation is conducting a project to understand the impact of electronic patient records (EPRs) on hospitals within the NHS.

    “We would like to invite you to a one-hour phone call to discuss your views and experiences with EPRs.

    In particular, we are interested in:

    • How EPRs affect the accuracy and completeness of information in your medical record
    • Whether EPRs influence how quickly you are seen or receive treatment

    We are hoping to speak to people who have had a hospital appointment within the last 3 months in a hospital that uses electronic patient records.

    We would like to speak to individuals in January 2026.

    If you would like to participate or learn more, please email Sarah Opie-Martin: sarah.opie-martin@health.org.uk

  • Is a career in research for me? - social care/work

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    Date & Time: Feb 26, 2026 10:30 AM

    Description
    This 90-minute webinar is for anyone interested in exploring research as part of their career in social care and/or social work.

    The NIHR funds world-leading health and social care research that improves people's health and wellbeing, while also promoting economic growth. We also support research careers, offering opportunities to develop new skills, access training and funding, and join a supportive network, while contributing to research that has real-world impact.

    The webinar will cover:


    • insights into life as a research professional, shared by researchers at different career stages
    • an overview of research career pathways and what research work looks like in practice - key opportunities and challenges within research careers
    Attend to discover:

    • first-hand perspectives on what it’s really like to work in research
    • the range of research roles and entry points available to those new to the field
    • our role in supporting individuals to develop research skills and career development
    You will also have the opportunity to ask questions of the presenters at the end. The webinar will be chaired by Catherine Robinson, Professor of Social Care Research at the University of Manchester.


    Register here: https://bit.ly/49Cwg5f

    Date & Time: Feb 26, 2026 10:30 AM

    Description
    This 90-minute webinar is for anyone interested in exploring research as part of their career in social care and/or social work.

    The NIHR funds world-leading health and social care research that improves people's health and wellbeing, while also promoting economic growth. We also support research careers, offering opportunities to develop new skills, access training and funding, and join a supportive network, while contributing to research that has real-world impact.

    The webinar will cover:


    • insights into life as a research professional, shared by researchers at different career stages
    • an overview of research career pathways and what research work looks like in practice - key opportunities and challenges within research careers
    Attend to discover:

    • first-hand perspectives on what it’s really like to work in research
    • the range of research roles and entry points available to those new to the field
    • our role in supporting individuals to develop research skills and career development
    You will also have the opportunity to ask questions of the presenters at the end. The webinar will be chaired by Catherine Robinson, Professor of Social Care Research at the University of Manchester.


    Register here: https://bit.ly/49Cwg5f

  • Learnings from DARE UK’s pilot public dialogue on AI

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    Collaboration Cafe: Learnings from DARE UK’s pilot public dialogue on AI

    January 29 from 13:00pm-14:30, online │£30 honoraria



    Discuss early findings from DARE UK’s pilot public dialogue on AI and how these insights will inform a wider national dialogue

    About the event

    This session will look at how Artificial Intelligence (AI) is being introduced and used in Trusted Research Environments (TREs), share the initial findings from DARE UK’s Pilot Public Dialogue on AI and develop the focus of their wider Public Dialogue on AI, which will take place UK-wide over the course of 2026.

    Participation at this event by public contributors attracts an honoraria of a £30 voucher per session, following HDR UK rates, with only UK participants able to claim this payment. Participants will receive an email from DARE UK following the event to process the payment.


    Event objectives

    • Share the findings of DARE UK’s Pilot Public Dialogue on AI;
    • Develop questions to inform the wider UK-wide Public Dialogue on AI.

    Who should attend

    • TREvolution technical team members;
    • Public Advisory Group members;
    • Members of the public.

    Learn more & register: https://www.eventbrite.co.uk/e/learnings-from-dare-uks-pilot-public-dialogue-on-ai-tickets-1980078919350?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl

    Collaboration Cafe: Learnings from DARE UK’s pilot public dialogue on AI

    January 29 from 13:00pm-14:30, online │£30 honoraria



    Discuss early findings from DARE UK’s pilot public dialogue on AI and how these insights will inform a wider national dialogue

    About the event

    This session will look at how Artificial Intelligence (AI) is being introduced and used in Trusted Research Environments (TREs), share the initial findings from DARE UK’s Pilot Public Dialogue on AI and develop the focus of their wider Public Dialogue on AI, which will take place UK-wide over the course of 2026.

    Participation at this event by public contributors attracts an honoraria of a £30 voucher per session, following HDR UK rates, with only UK participants able to claim this payment. Participants will receive an email from DARE UK following the event to process the payment.


    Event objectives

    • Share the findings of DARE UK’s Pilot Public Dialogue on AI;
    • Develop questions to inform the wider UK-wide Public Dialogue on AI.

    Who should attend

    • TREvolution technical team members;
    • Public Advisory Group members;
    • Members of the public.

    Learn more & register: https://www.eventbrite.co.uk/e/learnings-from-dare-uks-pilot-public-dialogue-on-ai-tickets-1980078919350?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl

  • Developing an inclusive health and care research system with Black African Diaspora communities

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    People from Black African Diaspora communities are currently not well represented in health and social care research. Find out about a project led by Warwick Medical School to better understand the needs of these communities and to make health and social care research more inclusive.

    Find out more about this work: https://warwick.ac.uk/fac/sci/med/research/hscience/apc/qualityandsafety/acheritageresearch/


    People from Black African Diaspora communities are currently not well represented in health and social care research. Find out about a project led by Warwick Medical School to better understand the needs of these communities and to make health and social care research more inclusive.

    Find out more about this work: https://warwick.ac.uk/fac/sci/med/research/hscience/apc/qualityandsafety/acheritageresearch/


  • TRExt

    supporting image

    A computer showing notes illustration Public Involvement Opportunity - TRExt

    This opportunity is for people who are...

    • Aged 18 years or over;
    • Interested in public involvement and engagement specifically with lived experience in the uses of information gathered from personal records.
    • Living in the UK.

    TRExt is a system to help computers understand messy text (like doctor’s notes) safely, so researchers can learn from it without risking privacy.

    In this study (a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison), we aim to collect the views and experiences of members of the public on the software and AI we are using in the TRExt project, so we can address any concerns and improve the automatic processing of sensitive information.

    This study is a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison.

    What is the opportunity?

    We’re putting people at the heart of the TRExt project. Our goal is to work with the public, researchers, clinicians, and technical experts to create tools that are useful, safe, and trustworthy. By joining our PIE workshop, you’ll play a vital role in shaping the project—helping guide decisions, identify potential risks, and ensure the benefits are clear and meaningful. Your input will influence how we accelerate research while protecting privacy and using AI responsibly. This is your chance to make a real impact on the future of health data research and ensure it reflects the needs and values of the people it serves.

    When and where

    You will be expected to attend up to three online meetings before the end of April, where you’ll discuss, comment, and give feedback on the project presented by the TRExt research team. Meetings will take place once a month between 10:00 am and 12:00 pm, including a comfort break.

    The first meeting is scheduled for 30th January, with further dates in February and March arranged based on the group’s joint availability.

    All workshops will be conducted in English; it is essential you are able to understand and give feedback verbally or written in English.

    Renumeration

    £25 per hour for your time and contribution for each meeting attended.

    How to apply

    Please follow the link button below to complete and submit your application form by midday on Friday 16th January 2026:

    https://forms.office.com/pages/responsepage.aspx?id=LrXKu76f1kOi859mxD3yaOqFRVa96idFoih8vhm0jw9UQzJZVzRLVUVVNk9XNVk4TTZTMTBaUVBLUy4u&route=shorturl

    If you have any queries, please contact claire.newman@swansea.ac.uk

    A computer showing notes illustration Public Involvement Opportunity - TRExt

    This opportunity is for people who are...

    • Aged 18 years or over;
    • Interested in public involvement and engagement specifically with lived experience in the uses of information gathered from personal records.
    • Living in the UK.

    TRExt is a system to help computers understand messy text (like doctor’s notes) safely, so researchers can learn from it without risking privacy.

    In this study (a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison), we aim to collect the views and experiences of members of the public on the software and AI we are using in the TRExt project, so we can address any concerns and improve the automatic processing of sensitive information.

    This study is a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison.

    What is the opportunity?

    We’re putting people at the heart of the TRExt project. Our goal is to work with the public, researchers, clinicians, and technical experts to create tools that are useful, safe, and trustworthy. By joining our PIE workshop, you’ll play a vital role in shaping the project—helping guide decisions, identify potential risks, and ensure the benefits are clear and meaningful. Your input will influence how we accelerate research while protecting privacy and using AI responsibly. This is your chance to make a real impact on the future of health data research and ensure it reflects the needs and values of the people it serves.

    When and where

    You will be expected to attend up to three online meetings before the end of April, where you’ll discuss, comment, and give feedback on the project presented by the TRExt research team. Meetings will take place once a month between 10:00 am and 12:00 pm, including a comfort break.

    The first meeting is scheduled for 30th January, with further dates in February and March arranged based on the group’s joint availability.

    All workshops will be conducted in English; it is essential you are able to understand and give feedback verbally or written in English.

    Renumeration

    £25 per hour for your time and contribution for each meeting attended.

    How to apply

    Please follow the link button below to complete and submit your application form by midday on Friday 16th January 2026:

    https://forms.office.com/pages/responsepage.aspx?id=LrXKu76f1kOi859mxD3yaOqFRVa96idFoih8vhm0jw9UQzJZVzRLVUVVNk9XNVk4TTZTMTBaUVBLUy4u&route=shorturl

    If you have any queries, please contact claire.newman@swansea.ac.uk

  • RHITE: a public register for individuals interested in taking part in brain injury research

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    RHITE: Register for Healthcare Involvement and Technology Evaluation

    For Patients, Public & Professionals

    About RHITE

    RHITE is a public register for individuals interested in taking part in brain injury research. By joining RHITE, you can play an active role in medical research and improve health outcomes.

    RHITE has been supported by the NIHR HealthTech Research Centre in Brain Injury in partnership with Orion MedTech, a not-for-profit Community Interest Company.

    Since the launch of the new NIHR HRC in Brain Injury, RHITE has been updated. Through the new Orion HealthHub you will have more control over your registration preferences and can amend your registered details.

    The NIHR HealthTech Research Centres have replaced the MedTech and In Vitro Diagnostics Co-operatives (MICs), which came to an end on 31 March 2024.

    Register your interest

    By signing up to RHITE using the form below, you are helping researchers and innovators to understand more about neurological health and care conditions.

    Sign up form: https://orion.net/rhite

    RHITE: Register for Healthcare Involvement and Technology Evaluation

    For Patients, Public & Professionals

    About RHITE

    RHITE is a public register for individuals interested in taking part in brain injury research. By joining RHITE, you can play an active role in medical research and improve health outcomes.

    RHITE has been supported by the NIHR HealthTech Research Centre in Brain Injury in partnership with Orion MedTech, a not-for-profit Community Interest Company.

    Since the launch of the new NIHR HRC in Brain Injury, RHITE has been updated. Through the new Orion HealthHub you will have more control over your registration preferences and can amend your registered details.

    The NIHR HealthTech Research Centres have replaced the MedTech and In Vitro Diagnostics Co-operatives (MICs), which came to an end on 31 March 2024.

    Register your interest

    By signing up to RHITE using the form below, you are helping researchers and innovators to understand more about neurological health and care conditions.

    Sign up form: https://orion.net/rhite

Page last updated: 25 Mar 2026, 04:18 PM