Popped

POrtal for Patient and Public Engagement in Dementia research

Sharing information about Popped: POrtal for Patient and Public Engagement in Dementia research

This platform invites you to share your thoughts on research projects aimed at improving dementia care.

By gathering feedback from the public, we hope to guide research in ways that reflect the needs and priorities of people with dementia, their carers, families, professionals and anyone with experience or interest in dementia.

https://popped.org.uk/

There are 2 surveys, which the NIHR RRDN is keen to promote locally:

1. READ OUT

https://popped.org.uk/read-out-survey/

About this project

This survey is part of the READ-OUT (REAl-world Dementia OUTcomes) programme. We aim to understand public and patient views on new blood tests for dementia and other memory problems. You will be asked about whether you would consider taking such a test, and what factors influence your decision. Your responses will help ensure these tests are introduced in ways that are appropriate, acceptable, and beneficial.

2. CHOICE-D

https://popped.org.uk/choice-d-survey/

About this study

CHOICE-D is a research study exploring what influences people’s decisions about taking part in dementia clinical trials.

Many dementia trials struggle to recruit enough participants. We want to understand why people might choose to join, or not join, these studies.